Note: Where available, the PDF/Word icon below is provided to view the complete and fully formatted document
Six months and still waiting for SYMDEKO listing



Download PDFDownload PDF

CHRIS BOWEN MP

SHADOW MINISTER FOR HEALTH

MEMBER FOR MCMAHON

SIX MONTHS AND STILL WAITING FOR SYMDEKO LISTING

Today is Worldwide Cystic Fibrosis day and should serve as a reminder to the

Government on their responsibilities to care for the 3,500 Australians living with

cystic fibrosis.

Greg Hunt made a promise to those with cystic fibrosis they would have access to

new treatment drug, SYMDEKO on the PBS as soon as it was approved.

The drug, which is a form of cystic fibrosis transmembrane conductance regulator,

treats the most common cystic fibrosis mutation, extending life expectancy and

improving quality of life.

It was approved by the PBAC for listing on the PBS for those who suffer cystic

fibrosis with the F508del mutation gene during the March PBAC meeting.

This means SYMDEKO was approved six months ago, and the Minister still hasn’t

listed it, despite promising to do so.

SYMDEKO just isn’t affordable for the people who need it most without being

subsidised on the PBS.

The Minister extended ORKAMBI on the PBS after it was recommended at the

March PBAC meeting, why hasn’t he done the same for SYMDEKO?

Minister must listen to Australia’s pharmaceutical experts, listen to cystic fibrosis

patients and list SYMDEKO on the PBS.

SUNDAY, 8 SEPTEMBER 2019

MEDIA CONTACT: LIZ FITCH 0424 512 512