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      9   MITOCHONDRIAL DISEASE

Mr Morrison, pursuant to notice, moved—That this House:

(1)    notes that:

(a)    mitochondrial disease:

(i)    is an incurable and debilitating genetic disorder that saps the body’s cells of their energy; and

(ii)   reduces the ability of mitochondria to produce energy required for vital bodily functions, disrupting important muscle and organ function and leading in some cases to organ failure or death;

(b)   a child is born every 30 minutes who will develop a mitochondrial disease before their tenth birthday;

(c)    one in every 200 people is affected by mitochondrial disease, but many are misdiagnosed;

(d)   each year 50 children will develop a severe or life-threatening form of mitochondrial disease;

(e)    there:

(i)    is a widespread lack of awareness about this disease, its symptoms or effects;

(ii)   are few effective treatments for this disease; and

(iii)  is currently no cure for this disease;

(f)    clinical trials are underway, however research into this disease requires greater monetary and community support and recognition;

(g)   scientists have linked mitochondrial dysfunction to other major diseases including Alzheimer’s disease, Parkinson’s disease and diabetes; and

(h)   advances in treatment for mitochondrial dysfunction could also improve treatments for millions of people who suffer these other illnesses;

(2)    recognises that:

(a)    16 to 22 September 2012 is Global Mitochondrial Disease Awareness Week;

(b)   23 September 2012 is Global World Stay in Bed Day to raise awareness and funds for research into mitochondrial disease; and

(c)    the Australian Mitochondrial Disease Foundation has been working since 2009 to support patients and their families, spread information and raise the profile of this disease in the community and medical field; and

(3)    calls on the Government to:

(a)    encourage the public and private sectors to promote greater awareness of mitochondrial disease;

(b)   help raise the profile of mitochondrial disease within the medical profession to overcome the lack of knowledge that contributes to misdiagnosis and improper treatment of this condition; and

(c)    ensure there is appropriate support for patients of mitochondrial disease and their families.

Document

Mr Morrison, by leave, presented the following document:

Australian Mitochondrial Disease Foundation—Stay In Bed Day—Sunday, 23 September 2012—Poster.

Debate ensued.

Ms Smyth addressing the House—

The time allotted for private Members’ business having expired, the debate was interrupted, Ms Smyth was granted leave to continue her speech when the debate is resumed, and the resumption of the debate made an order of the day for the next sitting.