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Thursday, 20 September 2007
Page: 195

Mr Kelvin Thomson asked the Minister for Health and Ageing, in writing, on 7 August 2007:

Can he confirm that Duchenne Muscular Dystrophy:

(a)   is the most common and severe form of muscular dystrophy;

(b)   is progressively disabling and terminal, and

(c)   that it affects one in every 3,300 boys.

If so, what action is the Government taking to promote research into Duchenne Muscular Dystrophy.

Mr Abbott (Minister for Health and Ageing) —The answer to the honourable member’s question is as follows:

(a)   Yes.

(b)   Yes.

(c)   Duchenne muscular dystrophy (DMD) is the most common serious form of childhood muscular dystrophy and occurs at an estimated frequency of about 1 in every 3,500 live male births1. Between 2000 and 2006, the Commonwealth Government through the National Health and Medical Research Council funded forty grants which involved expenditure of $9 million into research of all forms of muscular dystrophy. This included research specifically into DMD comprising ten grants and expenditure of $2.5 million.


1 Australian Neuromuscular Research Institute and Centre for Neuromuscular and Neurological Disorders, UWA Annual Report 2005. Australian Neuromuscular Research Institute, QEII Medical Centre, Nedlands WA Australia. Web